Thursday, June 23, 2011

Parkinson's is Hard Work!

The Parkinson's Unity Walk has come and gone and the local Sunnyvale Parkinson's Walk has done the same.  All the excitement about winning the Parkinson's Disease Foundation T shirt contest has dissipated.  So what's next?  Well, I'm thinking about submitting some artwork to the Parkinson's Disease Foundation; they're looking for artwork for their calendar and online gallery.  Here's a link:
http://www.pdf.org/en/show_work

 That's all for now, though.  I'm so tired; fatigue is my constant companion.  Ever notice that Parkinson's causes fluxes in the gravitational field?  I swear, sometimes I feel like I'm warping the space/time continuum.  It's so hard to do everything, from brushing my teeth to lifting and carrying.  By the end of the day, I feel like I've been digging ditches.  Amazingly enough, though, I've found that a little extra exercise really helps in the long run.  Seems counter intuitive, doesn't it?

Parkinson's is hard work, but you just have to work through it, I guess!

Wednesday, June 15, 2011

Scars and Parkinson's

I have a scar on my right knee.  I got it when I was 6 or 7 years old; my brother and I were flying kites in an empty lot and of course, I was focused completely on the kite.  I didn't notice the rock until I tripped over it and landed on my knee on a piece of broken glass.  There were tears, some stinging disinfectant  and a bandaid, but when I look at that scar, that's not what I remember.  I remember how it was to be a child, running effortlessly into the wind, my soul flying with my kite, the grass so green and the sky so blue that it looked like a painting in one of my books.  I remember the magic in the summer air, and the future stretching out to an infinite horizon.  The little scar on my knee makes it all real again, and I'm glad that I have it to remind me what it was like to be so young and free.

Maybe someday Parkinson's will be that way.  Maybe someday it will be gone, and all that's left will be scars in my memory.  The scars will remind me not of the bad things, but of the good people I have met, the challenges I have faced and the victories I have won.  Maybe I need to look around and find a kite to fly...

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About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.