Sunday, February 22, 2009
Thursday, February 12, 2009
What does this mean to me?, you ask. It's hard to describe, but participating in this Walk, and doing the other things I do to try to help find a cure for this stupid disease are more important to me than I ever dreamed possible. Almost every free minute of my day is spent thinking of ways to contribute to the cause, and some minutes that aren't free (oops!).
I wish the walk was tomorrow; I'm ready to go now!
Thursday, February 5, 2009
I did it! I donated my brain. Well, I put in the paperwork to allow my brain to be donated to the Parkinson’s Institute after my death. We dropped by the post office before work, and as I got out of the car to go mail my paperwork, I smiled and said to my husband “Well, here goes my brain!” It was weird, but as the envelopes with my forms in them left my fingers, I felt just a touch of separation anxiety, as if my brain really was in one of those envelopes. When I closed the mail slot, though, there was this warm glow filling up my soul; a feeling of joy, almost euphoria. It’s the same way I felt when I crossed the finish line with Team Parkinson at the SF Marathon.
Now I feel like I’m carrying precious cargo in my head. Who knows? Maybe my brain holds the secret to some terrible disease. I won’t say Parkinson’s, because by the time I die of old age, I expect Parkinson’s to be cured! On the other hand, if I died in a car crash tomorrow, I know that I will still be able to contribute somehow.
“And perhaps I’d deserve ya,
and be even worthy erve ya
if I only had a brain”
- I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.