Saturday, March 29, 2014

Helpless in the grip of dyskinesia yesterday.  They adjusted my DBS implant and one side was way too high. The posturing and strange movements were alarming and sometimes painful but... kind of hilarious too.  I called it "Supreme Dyskinesia" because I kept sticking my arm out in front of me in a "Stop in the Name of Love" gesture.  Seriously, though, it gave me a new appreciation for the struggles of people who live with dyskinesia; I wouldn't want to fight that battle.  I, at least, can just turn my implant down.

I am retired now.  Well, at least my layoff took effect and I'm not working; I'm still a little too young to actually retire.  Time to start that disability adventure!

About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.