Thursday, April 25, 2013

Walk on Saturday!

This will be my last post before the Parkinson's Unity walk in NYC on Saturday, the 27th.  I will post pictures of the event itself here and on Facebook. I hope that anyone reading this who can donate will do so.  If possible, please support me and my team (The Castle Stormers) or just make a general donation to help find a cure for Parkinson's disease.  Thanks so much!



Tuesday, April 16, 2013

can you believe it?  Last night I was running around with no shoes on, and now I have broken toe.  PLEASE forgive my language, but @#$#$%^%&&&^^**&^^%$@!!!!  Now I have to walk the whole 1.4 mile walk with a broken toe!!!!!.   wait a minute; what am I  talking about?  At least I still have legs... Sorry; I feel bad for our whole species right now.


Sunday, April 14, 2013

What's with my neck? A request for help

A new symptom has surfaced. When I'm "off", my neck seems to have a really hard time holding my head up.  I find myself looking only at the ground.   It becomes quite painful, though Gabapentin (Neurontin) seems to help.  When I sit at the computer,  I have to support my head on my hands/elbows to alleviate the pain.  The doctor says it's from working at the computer too much, but then why does it seem to get better when I'm "on"?

Anyone out there have this symptom?

Wednesday, April 3, 2013

Suffering and hope


For a while there, I thought I was never going to feel well again.  I was taking more medication than i was before, and having less 'on' time.   I am having a communication problem with my neurologist at Stanford.  She keeps telling me how i feel, and I keep telling her otherwise.  She doesn't listen to me sometimes.  She has all these charts and graphs and equations and algorithms that tell her how I am supposed to feel, but sometimes they are just dead wrong.  I am going back to my neurologist at Palo Alto Medical Foundation to see what he thinks.

All that being said, I suddenly started to feel better after my last "adjustment",  and now I have hope.  The doctor says that sometimes it can take a year to a year and a half to get it right.   Maybe  I just need to be more patient.

Bob and I are going to the Parkinson's Unity Walk in NYC on April 27th.  I can hardly wait!  Happy Parkinson's Awareness month to everyone!
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About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.