Sunday, March 10, 2013

Getting Better

I'm feeling better and stronger every day.  I have conquered the evil Mr. Nausea, and have found the secret lair of his boss, my nemesis, Dr. Parkinson's.  I am now doing battle with the infamous Dr. Parkinson's himself, using my new weapon; the DBS ray gun.

Meanwhile, in the real world...

I am feeling better every day.  I called Carlos and told him things were not working as well as I'd hoped, and he suggested I re-introduce my body to Sinemet (carbidopa/levadopa).  Just a little.  So, I did that and I feel pretty good, but I still think I need to "up" the voltage a little.  I'll find out on the 27th of March when I go back for my second "tuning".

It's a process.


Russell Brandom said...


I write for The Verge, a website covering the intersection of technology and culture. I'm working on a piece about Deep Brain Stimulation, and I'd like to ask you a few questions about your experience with the procedure. I'd link back to the blog, and you wouldn't need to publish your full name if you're not comfortable with that. Would you be interested in participating? If so, shoot me an email at

Russell Brandom

Lili Saint Laurent said...

Dear Marian,

it's a long time now without hearing from you!
Hope it's getting better and better!!!!!
With love and energy .....


Marian said...

Hi Lili,
When things aren't going that well, I tend not to post. It's a bad habit..I will try to rise above it.

Lili Saint Laurent said...

Dear Marian,

sorry for the misunderstanding ... Of course, when we are not getting well, it is not time for communication!
My message was not about posting or not ...
Just little warm-hearted words for you and hopes for a better future!!

About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.