I find that I'm looking forward to DBS surgery more and more. Not to the surgery itself, of course (although that is very interesting), but to how I'm going to feel afterwards. DBS is NOT a cure, and does NOT slow the progression of the disease, but it can be like a temporary miracle for those of us who struggle with PD every day. Sometimes it's difficult, tiring, or even painful to do the simplest things, and most of the time I can't even read a book comfortably. So, Creator, if you're listening, here is my wish list of things that I hope and pray that DBS will do for me.
1.) That it will help me to keep working for at least a couple of years, so that I can get my 30 years in (I have 28 years now).
2.) That it will even out the peaks and valleys in my PD symptoms, so that I can plan my activities a little better.
3.) That I can cut down on my medications and thus avoid the more severe side effects.
4.) That it will help me sleep a little better.
And one more wish, if at all possible, my dear Creator:
I would like to be able to dance again, and not just for one dance..
3 comments:
Hi Marion, I wish you success with your DBS surgery. I can relate to what your're going thru as I just had my DBS surgery on Dec.4/12 and will have my stimulator activated in a couple of weeks. My wishlist is very similar to yours except the continuing to work part. It's certainly a waiting game, two year wait list to be referred to a neurosurgeon, 8 month wait to be assessed, 6 month wait until DBS surgery, 8 week wait for initial activation of DBS. I liked your comment in another blog " Maybe that's why we are called patients".
Thank you for sharing so much so yourself in this blog. I will be praying for the success of your DBS surgery.
Thanks, Norma. I wil keep you in my thought and prayers too. I bet you're looking forward to having the stimulator activated; it sounds like you've had an even longer wait than I have! I will stop compaining about the wait times. well, for a little while, anyway....
Marian
i was diagnosed of parkinson disease 5 years ago,i started azilect,then mirapex as the disease progressed in february last year,and i started on parkinson disease herbal medicine from ultimate life clinic,few months into the treatment i made a significant recovery,almost all my symptoms are gone,great improvement with my movement and balance,it been a year and life has been so good for me,reach them through there website at www.ultimatelifeclinic.com
Post a Comment