Wednesday, January 26, 2011

Help for Parkinson's Documentary "Ride With Larry"

There's only a few days left for the folks at "Ride With Larry" to raise funds (February 1st is the cutoff date). Thankfully, they managed to get the $50K they needed in order to produce the film, but just barely. They need all the help they can get; I really think this project will raise a lot of awareness. From their Facebook page, here's a list of what they plan to do with the money

1. Film Larry in South Dakota this February to document his winter training & begin his video blogs
2. Travel to Europe to film two very important research studies
3. Interview geneticists studying Parkinson's and collecting 10,000 genetic samples of Parkinson's patients
4. Interview Larry's neurosurgeon in San Francisco
5. Travel to states such as Ohio, Georgia, New York, Connecticut and more to film doctors and researchers that are working on curing Parkinson's and improving lives
6. Find the youngest person with Parkinson's
7. Travel to South Dakota this May & June to follow Larry as he rides across his state
8. Many more interviews with experts, spokespersons, and patients in the Parkinson's field

Here's a link to the donation page:


Driving with no power steering said...

I just started following your blog and have learned many things already. I am 39 years old and was just diagnosed. Thanks for sharing your knowledge and story it is appreciated very much.

Meg Duggan said...

Hi Marian. I am the sister of a young onset PwP and have spent 14 years in PD advocacy, programming and fundraising. This fall my sister started having terrible problems with on/of cycling. We sat down and developed an on-line charting procedure for her. We've decided to share it with the PD community. Its FREE and ANONYMOUS. I'm hoping you will look at it, and if you like it, mention it on your blog to help us get the word out. You can find it at Thanks so much! Meg (Duggan)

Marian said...

No Power Steering: Love your screen name. Thanks for the kind words! 39 is so young to be starting on this journey; I hope things go well for you.

Meg: thanks for the link. I just signed up on your site, but I haven't really had time to test drive it yet. so far, it looks like just the thing i've been looking for; a nice, simple interface providing an easy way to track symptoms. now maybe I can quit making those darn spreadsheets!
I will publish a post about it soon. Nice job!

About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.