There's only a few days left for the folks at "Ride With Larry" to raise funds (February 1st is the cutoff date). Thankfully, they managed to get the $50K they needed in order to produce the film, but just barely. They need all the help they can get; I really think this project will raise a lot of awareness. From their Facebook page, here's a list of what they plan to do with the money
1. Film Larry in South Dakota this February to document his winter training & begin his video blogs
2. Travel to Europe to film two very important research studies
3. Interview geneticists studying Parkinson's and collecting 10,000 genetic samples of Parkinson's patients
4. Interview Larry's neurosurgeon in San Francisco
5. Travel to states such as Ohio, Georgia, New York, Connecticut and more to film doctors and researchers that are working on curing Parkinson's and improving lives
6. Find the youngest person with Parkinson's
7. Travel to South Dakota this May & June to follow Larry as he rides across his state
8. Many more interviews with experts, spokespersons, and patients in the Parkinson's field
Here's a link to the donation page:
https://www.kickstarter.com/projects/ridewithlarry/ride-with-larry-a-documentary-film?ref=users
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About Me
- Marian
- I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.
5 comments:
I just started following your blog and have learned many things already. I am 39 years old and was just diagnosed. Thanks for sharing your knowledge and story it is appreciated very much.
Hi Marian. I am the sister of a young onset PwP and have spent 14 years in PD advocacy, programming and fundraising. This fall my sister started having terrible problems with on/of cycling. We sat down and developed an on-line charting procedure for her. We've decided to share it with the PD community. Its FREE and ANONYMOUS. I'm hoping you will look at it, and if you like it, mention it on your blog to help us get the word out. You can find it at www.datadrivenhealth.org. Thanks so much! Meg (Duggan)
No Power Steering: Love your screen name. Thanks for the kind words! 39 is so young to be starting on this journey; I hope things go well for you.
Meg: thanks for the link. I just signed up on your site, but I haven't really had time to test drive it yet. so far, it looks like just the thing i've been looking for; a nice, simple interface providing an easy way to track symptoms. now maybe I can quit making those darn spreadsheets!
I will publish a post about it soon. Nice job!
I was diagnosed with Parkinson’s disease a year ago at the age of 68. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small cramped printing. And I tended to lose my balance. Neurologist had me walk down the hall and said I didn’t swing my right arm. I had never noticed! I was in denial for a while as there is no history in my family of parents and five older siblings, but now accept I had classic symptoms. I was taking pramipexole (Sifrol), carbidopa/levodopa and Biperiden, 2 mg. and started physical therapy to strengthen muscles. nothing was really working to help my condition.I went off the Siferol (with the doctor’s knowledge) and started on parkinson’s herbal formula i ordered from Solution Health Herbal Clinic, my symptoms totally declined over a 5 weeks use of the Parkinsons disease natural herbal formula. i am now almost 70 and doing very well, the disease is totally reversed!! Visit there website www.solutionhealthherbalclinic.com or E-mail: solutionsherbalclinic@gmail.com
i was diagnosed of parkinson disease 5 years ago,i started azilect then mirapex as the disease progressed in frebuary last year,and i started on parkinson disease herbal treatment from Ultimate Life Clinic,few months into the treatment i made a significant recovery,almost all my symptoms are gone,great improvement with my movement and belance,it been a year and life has been so good for me,contact them through there website www.ultimatelifeclinic.com
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