Saturday, January 22, 2011

New documentary about living with Parkinson's: Ride With Larry

This is inspirational, and I think, important to the Parkinson's community. Larry Smith is a PD patient who is planning to ride his special recumbent tricycle 280 miles this summer to spread information and awareness about Parkinson's. A documentary movie is being made about it, well at least they're TRYING to make a movie. They have 10 days left to raise the rest of the funds they need to make the movie a reality.

Please take a moment to look at the movie trailer (there is a link at the bottom of this page) and/or visit the web site:


Anonymous said...

I just found your blog. I was searching for information on PD (currently being screened - looking like probably) and hemochromatosis (iron overload - diagnosed in 1990). I read your blog from 2009 on iron and PD and wondered what your doctor had to say. Thank you. Michelle

Marian said...

Hi Michelle,
My doctor doesn't seem particularly interested in the connection. To begin with, I don't think she thinks that I have an iron problem at all, even though my iron levels have sometimes been low, sometimes quite high for no particular reason. I don't know; maybe she's right. Maybe it's just an absorption problem associated with Parkinson's. I'm going to try to keep up with it; ask for an iron test now and then, etc.

How about you? Have you talked to a doctor about this? I'm thinking there must be a connection there, because there seems to be an awful lot of PWP's with hemochromatosis, or, like me, a genetic mutation which indicates an elevated risk for it.

Thanks for reading, and for the comment!


Anonymous said...

Hi Marian,
Thank you for getting back to me so quickly. I have an appointment with my hemotologist next week for the hemochromatosis and was going to ask him and then take it up with the neurologist. I had read a one liner on and started online research, which is how I came across your blog. There is a lot of stuff but they all hedge about direct linkage. Like your blog, glad you are here. Waiting for the diagnosis sucks. I am sure you can relate. Thanks again, Michelle

Maria Wilson said...

This is my testimony about the good work of a doctor who cured names is maria willson,i was parkinson's positive for 2 years,so i tried so many medicine such levodopa ,i was not able to get cured, till one day i saw someone post about doctor bongani who cured him ,so i contacted him via his email.drbonganiherbalcure(at)gmail(dot)com,so he replied .and said he will cure me ,i thought it was a joke .so said i must send me details to him .which i did ,then i purchased the herbal medicine ,which was not expensive,so he i sent it to me ,when i received the herbal medicine ,he told me how to use it ,and said i will be cured within two weeks of usage,so i believed and have faith ,every thing he said happened as planned ,and am free from the deadly diseases .please don't neglect this post is very true and real two months now i feel so great and healthy just try u will testify.he also cures HERPES,ALS,MND,EPILEPSY,LEUKEMIA,ASTHMA,,GONORRHEA,,EMPHYSEMA,GENITAL WARTS ETC...

About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.