Tuesday, January 29, 2013

Deep Brain Stimulation Surgery; a visual diary.

A "before" picture; I was tired of long hair anyway...

just prior to having the fiducials installed; cutting off yet more hair.  This was perhaps the most traumatic part of the process, not because it was particularly painful, but there's just something weird about having a power screwdriver  used to screw something into your head

This was after I had the fiducials installed;  I returned home triumphant, but looking like I needed a fife or a drum to play.
I am Borg.  You will be assimilated.  Resistance is futile.

After the operation; what a train wreck!  You can't really see it here, but there's a double row of nasty-looking staples and other metal bits up there.
Felt kind of sick the first 3 days; I think it was the vicodon.  Couldn't eat a thing until I stopped taking it.

 Contrary to what I've heard, the operation was NOT painless, and I did NOT forget what happened, what I said and what others said.  Every conversation remains crystal clear in my memory.  Also, don't ever let anyone tell you that the brain has no nerve endings and so can feel nothing.  I felt something, all right.  I especially remember when the surgeon said he was going to irrigate it with cold water, and I felt the soothing coolness on my poor abused brain.  That's the bad news; now here's the good news:  I FEEL NO PARKINSON"S SYMPTOMS AT ALL RIGHT NOW!!!


Anonymous said...

you are so brave and strong! i can't imagine the operation, but the benefits will be worth it!! thank you for sharing your journey with us


Lili Saint Laurent said...

So happy to hear about you! What a strange experience! I'm impressed by you beautiful smile and your optimism.
Thank you so much Marian to share it with us.
Hope the best and take care :-)

Marian said...

Thanks Kaitlyn, Thanks Lilli! You girls help keep me going.

I am feeling stronger every day; got the control box installed yesterday; now it looks like I have 3 boobs. It's also quite painful. I guess it will settle in in a few days.

Today, I feel strong enough to venture to .... the Grocery Store!!! Don't laugh; I find the grocery store frightening on a normal day...

Luke Ilett-Mackie said...

This blog has really moved me. I study Psychology and so were learn about neurological disorders such as Parkinson's and about treatments such as DBS, but we never get the human story behind the theory.

This blog has really opened my eyes to the life of someone coping with something so difficult, and how amazing you've been at dealing with it. I feel like when studying it's important to hear actual personal stories rather than just the theory! So thank you for giving me such an amazing insight! I look forward to reading the rest of your blogs :D

Luke x

Anonymous said...


I want to thank you for writing an incredibly informative blog and for being an inspiration to people living with Parkinson's. You are so honest in your journey.

I wrote about your blog as being one of my favourites here: http://wp.me/p1l8Lq-sD (feel free to share!)

Thanks for everything that you do!

Anonymous said...

(hyperlink to page where your blog is favourited : kaitlynroland.wordpress.com

Lili Saint Laurent said...

Hope the best and that now you feel better and stronger!

Marian said...

Thanks for the good wishes, everyone! Luke: I am so happy to hear from the next generation of researchers and I am doubly pleased that I was able to help in some way. Kaitlyn; what can I say? I love your blog, and I'm honored that you mentioned me.

About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.