Saturday, May 1, 2010

What fresh hell is this?

It's almost 4:00 in the morning. I've been awake since 2:30, trying to relax the muscles in my body so that I can sleep, but it's no good. The dystonia that started in my left foot seems to have spread; my entire left leg is painfully tight, my right leg is not far behind. The muscles in my neck and shoulders are not listening to my commands either. I tell them to relax, and they won't; well, only for a second or two anyway. Even my throat muscles are painfully tight; it feels the way your throat does when you are about to cry, but worse.

The Parkinson's walk is today; what am I going to do if this doesn't subside? Get the cane out and hobble on, I guess. Oh well, at least I got a good solid 2 and a half hours of sleep...

1 comment:

Bob Kuhn said...


I am proud of you and your willingness to be transparent and share the frustrations and fears that dog the shuffling steps of all of us struggling with PD. In a strange way it gives me more confidence to face the enemy. Sleep? It will come. My antidote hsd been to say to myself, "You can always nap when the need arises and the opportunty presents itself. People will understand."

Keep going, Marian. We are cheering for you.


About Me

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I'm a lucky lady. I have a wonderful husband of 27 years, a fantastic 25 year old son (I'm so proud of him!) a loving and supportive family, the best friends in the world, a job that I love, and... Parkinson's Disease. I was diagnosed in September 2006. That was a jolt, but I'm learning to deal with it.